Introducing Braxton Jeremiah Johnson, born on March 13, 2018, at a local Lubbock, Tx hospital. Braxton perceives the world through sound and touch due to being born with Septo Optic Dysplasia, a condition affecting early brain development. This results in blindness due to optic nerve hypoplasia, alongside Pituitary Hypoplasia causing growth hormone deficiency and panhypopituitarism. Despite his challenges, Braxton harbors a deep love for music, ranging from Justin Bieber to the Bee Gees, Post Malone to Elvis Presley, Fergie to the Beatles. Perhaps unconventional choices, yet undeniably his passions. Upon returning home, Braxton retreats to his room, kicks off his shoes, and dances solo for hours. The feeling of the wind on his face evokes laughter, and defiance only fuels his determination. His favorite spots are the swing and trampoline, where he finds joy and freedom.
Were you aware that March of Dimes actively influences federal and state healthcare legislation and regulations? They advocate for eliminating non-medical vaccination exemptions, improving healthcare for mothers and infants, and bridging healthcare disparities, without discrimination. Through initiatives like #BlanketChange and #MOMNIBUS, March of Dimes strives to address ethnic disparities and enhance maternal health outcomes. Many infants, like Braxton, are diagnosed with conditions like his through Newborn Screening Tests, crucial in identifying serious health conditions early. Without proper treatment, children like Braxton face the risk of adrenal failure, underscoring the importance of timely diagnosis and intervention. Our advocacy for improved services for our babies is unwavering; we strive for healthy mothers, healthy babies, and resilient families, equipped with the necessary medical and support systems to thrive.
Will you stand alongside us in this fight, extending your support to hospital programs like the NICU, where we spent countless weeks nurturing our beloved Bubba?
I invite you to visit my fundraising page and contribute. Together, we will play a vital role in advancing equity in America and ensuring the well-being of every mother and baby.
With preterm birth rates continuing to rise, the U.S. remains among the most dangerous developed nations for childbirth, especially for women and babies of color.
At March for Babies: A Mother of a Movement™ you're lifting up communities, creating connections and taking action to make America a more equitable place and ensure that every mom and baby is healthy.
Together, we’re marching to raise funds and awareness to transform the health of all families!
THANK YOU FOR YOUR SUPPORT!